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Living Well With Metastatic Breast Cancer

Women (and men) diagnosed with MBC have unique needs and concerns and it is important to acknowledge the emotional, mental, and physical aspects associated with such diagnoses. 

Living well is more than looking after one's physical self. It entails taking care of the emotional self, time management as priorities may shift, balancing quality of life with treatments and finding support and information when you need it. This Resource Guide will continually be updated with information and we're always happy to hear your feedback on what may serve you best! 

Image by Aaron Burden

Living with
Metastatic Breast Cancer

Resources & Support  

So You Can Keep Living Life!

Created in partnership with Abigail Johnston and the Grieving Together Project. In honor of the late Alyson Tischler.

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MBC Sunday Series

Every other Sunday we host free webinars for our MBC community where we invite guest speakers and panelists to address the most pressing questions. Topics range from grief support, speaking to your family about your diagnosis and telling your children, to advances in treatments, legal estate planning and more. 

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Get Online Support

(It's Free)

Connecting with others who have similar experiences helps us share our stories and heal. There are a variety of ways to meet those who are living with MBC through our virtual and online communities and private groups. 

Living With Metastatic Breast Cancer

Living with metastatic breast cancer (MBC) requires unique, tailored approaches that often differ from those diagnosed at an earlier stage breast cancer. Survivingbreastcancer.org is committed to addressing the gaps between early and advance stage breast cancer to improve education, support, and resources for our MBC community. 

Metastatic Breast Cancer Terms and Definitions

Metastatic breast cancer is also referred to as Stage IV, or advanced (stage) breast cancer. It is when the cancer cells have spread through the lymphatic system or blood stream to other parts of the body such as the bones, brains, lungs, or liver. 

De Novo is a term that refers to a metastatic diagnosis at the time of initial diagnosis and staging. A de novo metastatic breast cancer diagnosis accounts for approximately 6-10% of breast cancer diagnoses. 

Distant Recurrence is a term that is used when the cancer has returned after an initial diagnosis and treatment and has spread beyond the breast to other parts of the body. The average time from diagnosis to distant recurrence is approximately 5 years, though it can vary widely. 

Thursday Night Thrivers Meetup 

Every Thursday at 7pm ET, those diagnosed with breast cancer meet up for our "no-agenda" zoom hang out. Our meetups are unique because they are hosted by the community, for the community. This is peer-to-peer support at it's finest and not your average support group. There is a place and time for social workers and medical professionals but at our Thursday Night Thrivers Meetups, it is come as you are to meet up and hang out with like minded friends! 

All stages are welcomed.  On the third Thursday of each month, we will also host a breakout room specifically for MBC.