El diagnóstico de cáncer de mama de cada persona es diferente. Cada persona responde de forma diferente al tratamiento. Comparte TU HISTORIA El diagnóstico de cáncer de mama de cada persona es diferente. Las personas responden de forma diferente al tratamiento e incluso toman decisiones diferentes en función de su situación personal. También entendemos que el cáncer de mama se extiende mucho más allá de la persona diagnosticada ya que afecta a todos los aspectos de la vida, incluidos los miembros de la familia, los amigos y los seres queridos. Compartir tu experiencia no sólo ayuda a otras personas que buscan una conexión, sino que también es terapéutico para ti. Desahogarte por todo lo que has pasado, expresar tus preocupaciones, preguntas, miedos, éxitos y celebraciones, puede ayudarte a dar sentido a la experiencia del cáncer. Además, muestra a los miembros de nuestra comunidad survivingbreastcancer.org que no están solos y que somos una poderosa comunidad de guerreros. ¿No sabes como empezar? Explora nuestras historias de supervivientes y luchadores contra el cáncer de mama aquí . También estamos creando recursos para madres, hijas, cónyuges y otros, así que asegúrate de visitarnos a menudo. Envíanos tu contenido HISTORIAS - BLOGS - POESÍA Formulario Comparte tu historia, blog o artículo Nombre Apellido Email Enviar Sube tu documento o compartenos el link de Google Docs Sube tu foto aquí Sube tu artículo aquí Si quieres puedes compartir tu usuario en redes ¡Gracias por Compartir! ¿Necesitas ayuda con los temas y las ideas? Tenemos orientaciones y recomendaciones para empezar. Puedes encontrarlas debajo del formulario de presentación. ¿Qué información personal debo incluir en mi relato? Siéntete libre de compartir toda la información con la que te sientas cómodo. Piensa en el momento en que te diagnosticaron la enfermedad: ¿Qué información buscabas? ¿Qué te hubiera gustado saber? Algunas de las cosas que puedes compartir (pero que no son obligatorias) son: Edad del diagnóstico ¿Cuál fue tu diagnóstico (tipo, estadio)? ¿Te has sometido a quimioterapia y, en caso afirmativo, qué fármacos has tomado? ¿Te han operado? En caso afirmativo, ¿Qué tipo de operación, Cómo se hizo esa elección, y/o se vieron afectados los ganglios linfáticos? ¿Te has sometido a radiación? Si es así, ¿cuántas semanas? ¿Estuviste en alguna prueba experimental? ¿Cómo fue tu experiencia? ¿Estás tomando alguna terapia hormonal, y si es así, qué medicamentos? Siempre puedes incluir tu correo electrónico, si quieres que los supervivientes te envíen un correo y se pongan en contacto contigo directamente. Sólo utilizamos los nombres reales si te así lo deseas y siempre puedes indicarnos si prefieres el anonimato. ¿Qué temas debo contar en mi historia? Puedes compartir sobre una variedad de temas. Expresa como es o fue tu propia experiencia. Comparte temas que creas que pueden ser útiles para que otros los entiendan. Utiliza tu historia como medio de catarsis, para desahogarte y liberarte. Algunos ejemplos (pero no limitados a) incluyen: ¿Qué esperar de la quimioterapia? ¿Cómo gestionar la pérdida de cabello, consejos y recomendaciones? Entender los cambios corporales y cómo afrontarlos Salud y nutrición/hábitos alimenticios durante el tratamiento Combatir la fatiga y el "chemo brain" Gestionar el equilibrio entre el trabajo, el hogar y la vida, mientras estás en tratamiento Las 10 cosas que desearía saber antes de iniciar el tratamiento/la cirugía Un día en la vida de un superviviente... ¿Y si no me gusta escribir o llevar un diario? ¿Hay otras formas de compartir mi historia? ¡Por supuesto! Este es un espacio creativo y abierto para que los sobrevivientes y sus cuidadores compartan sus experiencias a través de una variedad de medios expresivos. Siéntete libre de compartir tu historia a través de un diario/escritura, poesía, música, arte, movimiento y más. ¡Comparte lo que tú quieras! Siempre puedes enviarnos imágenes para incluirlas con tu historia. Si quieres que te ayudemos a editar cualquier contenido, sólo tienes que decírnoslo. Estaremos encantados de ayudarte. ¿Y si quiero incluir fotos o actualizar mi historia más adelante? No hay problema. Sólo tienes que ponerte en contacto con nosotros y podremos añadir fotos y hacer actualizaciones en cualquier momento.

El diagnóstico de cáncer de mama de cada persona es diferente. Cada persona responde de forma diferente al tratamiento. Comparte TU HISTORIA Everyone's breast cancer diagnosis is different. People respond differently to treatment and even make different decisions based on their own personal preferences. We also understand that breast cancer extends well beyond the person who is diagnosed. It touches all aspects of life including family members, friends, and loved ones. Sharing your experience not only helps others looking for connection, but it is also therapeutic for YOU! Unpacking everything you have been through, expressing your concerns, questions, fears, successes, and celebrations can help you make sense of the cancer experience. Moreover, it shows those in our survivingbreastcancer.org community that they are not alone and that we are a powerful community of warriors! Looking for examples? Explore our breast cancer survivor and breast cancer thriver stories here . We also are building out resources for moms, daughters, spouses, and more, so be sure to check back often. Need help with topics and ideas? We have guidance and recommendations for getting started located below the Submission Form. Everyone's breast cancer diagnosis is different. People respond differently to treatment and even make different decisions based on their own personal preferences. We also understand that breast cancer extends well beyond the person who is diagnosed. It touches all aspects of life including family members, friends, and loved ones. Sharing your experience not only helps others looking for connection, but it is also therapeutic for YOU! Unpacking everything you have been through, expressing your concerns, questions, fears, successes, and celebrations can help you make sense of the cancer experience. Moreover, it shows those in our survivingbreastcancer.org community that they are not alone and that we are a powerful community of warriors! Looking for examples? Explore our breast cancer survivor and breast cancer thriver stories here . We also are building out resources for moms, daughters, spouses, and more, so be sure to check back often. Need help with topics and ideas? We have guidance and recommendations for getting started located below the Submission Form. Submit Content Stories. Poetry. Blogs SUBMIT FORM COMING SOON. In the short term please email your submission via email to info@survivingbreastcancer.org Thank you!

Cómo apoyar a alguien con cáncer puede ser una tarea abrumadora. Saber qué decirle a alguien con cáncer o cómo apoyarlo puede ser difícil. Esta es la guía definitiva para el cuidado que apoya al cuidador y permite que esa persona sea lo mejor posible para apoyar a un ser querido, cónyuge y amigo. Salud Física Salud Mental Arteterapia Podcast More Te acaban de diagnosticar... Aprende de nuestros cuidadores cómo tu familia, amigos y compañeros de trabajo pueden apoyarte. Una guía para Cuidadores de personas Diagnósticadas con Cáncer de Mama Escucha las voces que nos inspiran a seguir adelante... ¿Eres un cuidador o cuidadora? Comparte tu Historia con nosotros! Historia de William Introducción En medio de un agradable y soleado paseo de finales de verano por las playas de Boston, mi pareja, que llevaba doce meses en tratamiento por cáncer de mama, me miró y me dijo: “Este ha sido el peor año de mi vida”. Mi respuesta fue inmediata: “Estoy en total desacuerdo, siento que este ha sido el el mejor año de tu vida”. Me miró como si tuviera dos cabezas y me preguntó a qué me refería. Elaboré mi respuesta con una sonrisa pensativa, “Acabas de vencer al cáncer de mama”. Esta conversación resumió acertadamente mi papel como cuidadora del cáncer de mama. Cierre - Manejo de expectativas Para terminar, me gustaría sugerir que como cuidador permanezcas enfocado en el trabajo que tienes entre manos y manejes las expectativas. No intentes hacer demasiado. Reconoce lo que puedes hacer, investiga debidamente para que puedas ayudar en la discusión y la toma de decisiones. Mantente positivo e inspirado y tan útil sea posible. Pero recuerda que es un largo recorrido y que tu y tu paciente deberán contar entre ustedes durante la terrible experiencia. Fomentar el Optimismo, Evitar la Negatividad Una última anécdota: en medio de un momento particularmente deprimente, le sugerí que fuéramos a dar un paseo en bicicleta para sacarla de su entorno. Como de costumbre, fuimos demasiado lejos (40 millas en total ese día) y su depresión estaba surgiendo. Así que aproximadamente treinta millas de nuestro viaje nos detuvimos y tomamos un descanso. Después de rehidratarnos y cargar combustible, pudimos levantarnos y regresar las últimas 10 millas a nuestro condominio en Boston. Meses después, me preguntó cómo pude ayudarla a superar su depresión severa y aterradora en ese viaje en particular. Me dijo que sus pensamientos bordeaban la realización de acciones irracionales. Le dije que permanecí enfocado en lo positivo y que no le ofrecí ninguna justificación psicológica para lidiar con su tristeza extrema y su comportamiento potencialmente dañino. Luego me preguntó “cómo supiste cómo responder” y mi respuesta fue simplemente reafirmar los aspectos saludables y positivos de nuestras vidas, lo que siempre nos devuelve a nuestro código en tiempos de problemas: Seguir Adelante. Características del cuidado Hay muchas características de la vida como cuidador. El apoyo que se brinda a un paciente/sobreviviente de cáncer incluye muchos de los siguientes: aspectos emocionales, físicos, intelectuales, financieros, sociales, espirituales, nutricionales y motivacionales, por nombrar solo algunos. Pero nunca estás solo. Hay ayuda y asistencia en todas partes. A continuación hay 2 artículos que pueden servirte de guía para ser un cuidador. Después del Diagnóstico: Una guía para pacientes y sus familias Bienestar para los cuidadores Desde el momento del diagnóstico en adelante, entran en juego las responsabilidades asociadas con el cuidado. Hay reuniones y discusiones con sus equipos oncológicos y quirúrgicos. Se ofrecen y ponderan opciones y cursos de acción alternativos. Las decisiones deben tomarse en poco tiempo, por lo que es mejor prepararse con anticipación realizando la mayor diligencia posible. Investigar sobre las diversas opciones según lo explicado por tu equipo de atención. Una vez que se acuerde y planifique un curso de acción, ten especial cuidado de mantenerte al tanto de los desarrollos, es decir, citas programadas, manejo del dolor/emocional, medicamentos, coordinación y comunicación de la información a la familia de cuidado extendida y ayuda con las tareas del hogar. En todo momento, ten en cuenta que estás allí para ayudar al paciente. Esto no se trata de ti. Involúcrate en los problemas emocionales del paciente. No es necesario ser un profesional médico hay que tener sentido común y brindar nuestra respuesta a través de la lente del cuidado, es así como deben brindarle las herramientas suficientes para lidiar con la miríada de emociones que surgen, como el miedo y la depresión/tristeza. Hay muchos grupos de apoyo a los que puedes comunicarte, incluidos grupos de atención hospitalaria, psiquiatras, páginas de redes sociales/medios. SurvivingBreastCancer.org #survivingbreastcancer La perspectiva social Juntos nos arriesgamos e informamos a todos nuestros amigos, tanto en persona como a través de las redes sociales, del diagnóstico. También lo discutimos con el personal de nuestro restaurante del área local y en círculos de trabajo en la YMCA, para eliminar cualquier temor de consideraciones/comunicaciones de amigos y asociados con respecto a su cáncer. Recuerda, el paciente pasará por cambios tanto emocionales como físicos, pero aún querrá reanudar actividades placenteras como citas nocturnas o caminar en la caminadora tanto como sea posible. Descubrimos que la discusión abrió muchas puertas de bondad, amistad y solidaridad. Largo Plazo El remedio y el tratamiento del cáncer de mama es un compromiso a largo plazo. Debes ser consciente del hecho de que tu también, como cuidador, necesitas ayuda y apoyo, y también tiempo de calidad. No intentes hacerlo todo. Involucra a otros, ya sea familiares, amigos o incluso grupos de apoyo médico. Mantente flexible. Debido a la naturaleza cambiante y constante de la recuperación, desde la quimioterapia hasta la cirugía, la radiación, la quimioterapia adicional (si es necesaria) y los tratamientos hormonales de seguimiento, es posible que te enfrentes a múltiples facetas en los pacientes. Los efectos secundarios del tratamiento son variados e incluyen pérdida de cabello, aumento de peso por agua, alteración física de los senos, depresión, agotamiento, linfedema, problemas de fiebre aftosa, entre otros. Prepárate lo mejor que puedas para evitar que lo anterior te afecte negativamente en tu función. Está bien que el paciente esté cansado y triste. También está bien para el cuidador. Encontré que la comedia y la música (películas, televisión, radio) son un gran alivio, ya que tienden a cambiar la narrativa. SUSCRÍBETE Nuestro boletín semanal incluye historias e información importante, tenemos varios eventos gratuitos para ti. Suscribete

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Health and fitness has always been a part of who I am. For decades I have practiced yoga, enjoyed running, hiking, biking, swimming and weight training. I followed a vegan diet and thought I was in the best shape of my life, that is, until I was diagnosed with breast cancer at the age of 34. "How could this happen to me?" This shattering news became the catalyst for launching SurvivingBreastCancer.org. I have undergone both neoadjuvant and adjuvant chemotherapy, surgery, radiation, and hormonal therapies, and noticed that the real trauma from a cancer diagnosis came after I completed my active treatment. It was when I heard the good news that my next follow-up appointment would not be next week, but in 12 weeks, followed by 6 months, and then in a year. That's when it hit me. That's when I realized the important role Survivingbreastcancer.org plays in the breast cancer arena and why I have dedicated myself to building a breast cancer survivorship platform. Understanding my own health and wellness not only became my top priority, but it became my full-time job. Managing one’s health isn’t something that you do 3 days a week. It is a commitment to one’s self and life-style choice. The Surviving Breast Cancer organization revolves around a positive mindset, and I want to share that mindset with you! Come take a look around and make yourself at home! Xo, -- Laura about us Latest Newsletter Get Inspired. Find Hope. Each week Surviving Breast Cancer shares words of wisdom, insights, and resources to help you manage a cancer diagnosis. From breast cancer survivor stories, to tangible tips to keep you going on those tough days. Whether you have invasive lobular carcinoma and are considering a double mastectomy or have stage III triple negative breast cancer, our newsletter is for you. Click below to read this week's newsletter READ MORE SUBSCRIBE LATEST PODCAST On "Breast Cancer Conversations", the podcast, you will listen to voices that unveil the realities of breast cancer. Surviving Breast Cancer asks poignant questions, our guests give us authentic answers. You will hear inspiring stories from those who are navigating a breast cancer diagnosis, understand the complexities of mammography, breast reconstruction, and gain valuable information delivered to you weekly. LISTEN NOW SUBSCRIBE Diagnosed with breast cancer at 34 We all have a story. We are all here to share & Support.

Circulo de Mujeres Un espacio recurrente diseñado especialmente para mujeres diagnosticadas con cáncer que buscan trabajar en sí mismas, descubrir nuevas herramientas de crecimiento personal y fortalecer su bienestar emocional. A través de dinámicas de coaching, reflexión y acompañamiento grupal, cultivamos juntas la resiliencia, el empoderamiento y una nueva mirada hacia la vida.

Be empowered, meet others who get it, ask questions, share your story, and become part of an online community that will support you from day one and beyond. This is your online breast cancer support group. There are several ways to get support through our online communities. Our global network provides opportunity for you to connect with others who have been touched by breast cancer in a safe and supportive environment. Our online communities enables you to receive peer-to-peer support where you can ask questions, share tips, and know you are not alone in this experience. Our network consists of those diagnosed with breast cancer, survivors, thrivers, caregivers, medical professionals, advocates, and friends. Breast Cancer Support Get Matched With A Mentor. Through our partnership with ABCD and Project Life, you can now get free one-to-one support from a professionally-trained Mentor who has been diagnosed with Breast Cancer and who is similar to you. Here’s how it works: Early Stage: If you are diagnosed with early stage breast cancer, i.e., stages I-III, complete the ABCD intake form on their website and they will be in touch to match you with a mentor. Late Stage: If you are diagnosed with late stage breast cancer, also referred to as metastatic breast cancer or stage IV, Project Life offices mentors whether you were diagnosed de Novo, had a recurrence leading to MBC, or are experiencing progression, contact mentorship@projectlifembc.com to get matched. These services are free, completely confidential and always available. When completing the ABCD form or emailing Project Life, be sure to indicate you heard about the program from Survivingbreastcancer.org! Join the community! Have access to discussion boards, insider news and information, and make connections. Join a Group Today Despite the circumstances in which we are meeting (breast cancer and all) I am glad you are here and welcome you to our SBC Community. Join our Online Community Online Breast Cancer Support Groups Después de un Diagnóstico Tue, Feb 21 Después de Un Diagnóstico More info Details Arteterapia Tue, Feb 07 Arte terapia para el Alma More info Details Multiple Dates Después de un Diagnóstico Tue, Dec 20 Virtual More info Details Multiple Dates Thursday Nights Thrivers Meetup Thu, Dec 15 Virtual More info Details Reflect and Recharge with Thomas Dooley Mon, Dec 12 Online Event More info Details Multiple Dates 15 Minute Heart Chakra Chanting with Gloria Mon, Dec 12 Online Event More info Details Multiple Dates Thursday Night Thrivers IBC Meetup Thu, Dec 08 Online Event More info Details Food & Fitness For the Cancer Survivor Tue, Dec 06 webinar More info Details Multiple Dates Thursday Nights Thrivers MBC Meetup Thu, Dec 01 Virtual More info Details Thursday Nights Thrivers MBC Meetup Thu, Dec 01 Virtual More info Details Multiple Dates 15 Minute Solar Plexus Chakra Chanting with Gloria Mon, Nov 28 Online Event More info Details Chair Yoga 4 Cancer with Tamera Mon, Nov 21 Online Event More info Details Art Therapy for Healing your Body Image with Stephanie Mon, Nov 21 Online Event More info Details Reflect and Recharge with Thomas Dooley Mon, Nov 14 Online Event More info Details Understanding Long-Term Disability Insurance Thu, Nov 10 webinar More info Details Restorative Yoga with Kate: Fall Into Meditation Mon, Nov 07 Online Event More info Details Thursday Nights Thrivers MBC Meetup Thu, Nov 03 Virtual More info Details Multiple Dates 15 Minute Sacral Chakra Chanting with Gloria Mon, Oct 31 Online Event More info Details Load More Explore Online Workshops Healing Through the Arts Explore Always Connected. Never Alone. Attend Online Movement Classes MOVING MONDAY JOIN US

Download from Google Play Download from the App Store Breast Cancer App First Ever Social Media App Designed Specifically for Breast Cancer Have access to News and articles Private Groups Instant Message with community members RSVP to events Get support 24/7 with a community who gets it!

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Estamos encantados de que vayas a participar en nuestro Webinar, Transmisión en vivo y/o Podcast Después de un Diagnóstico. Este es un espacio seguro donde compartimos información sobre el cáncer de mama. Nos enfocamos en las experiencias personales de quienes ya han sido diagnosticadas con cáncer de mama. Compartimos contenido educativo con expertos en el campo. Los médicos invitados nos proporcionan información y comparten sus perspectivas sobre avances científicos en la industria. Ahora, ¡Vamos a prepararnos para tu gran día! ¡VAS A SER PARTE DE NUESTRO PODCAST! CUÉNTANOS SOBRE TI Nombre Apellidos Email Teléfono ENVIAR ¡Gracias, tu formulario ha sido enviado! Sube tu biografía aquí Upload File Upload supported file (Max 15MB) Sube tu foto aquí Upload File Upload supported file (Max 15MB) Enlace a tu cuenta de twitter Enlace a tu cuenta de Instagram Al enviar el formulario a continuación, usted otorga pleno consentimiento a survivingbreastcancer.org para usar todo el contenido y las fotografías para, entre otros, nuestras redes sociales, publicidad, boletines, uso del sitio web, materiales impresos y relaciones públicas, y sin limitación, reserva , o compensación. Survivingbreastcancer.org se reserva el derecho de editar el contenido. Comparta sus identificadores de redes sociales si desea que lo etiquetemos cuando se comparta el Podcast en nuestras redes sociales. FORMULARIO DE ADMISIÓN AL PODCAST El audio lo es todo. Tienes una historia increíble que contar. Hablar a través de su computadora no tendrá una gran calidad de sonido, así que asegúrate de tener unos buenos auriculares/micrófono antes de nuestra entrevista. (Casi cualquier marca funcionará. Básicamente, queremos evitar la retroalimentación proveniente de los parlantes de la computadora). También te recomendamos encontrar una habitación tranquila que tenga alfombras. El sonido tiende a rebotar en los pisos de baldosas y en las salas grandes de concepto abierto. Lo mejor es encontrar una habitación más pequeña con muchas alfombras, alfombras y sofás que puedan ayudar a absorber cualquier respuesta de audio. Asegúrate de que no haya interrupciones ni distracciones y planifica 1 hora de tiempo ininterrumpido para nuestra llamada. Usaremos Zoom o Streamyard para nuestra llamada y enviaremos audio a nuestra caja de resonancia principal. Se te enviará un enlace por correo electrónico con anticipación. Ten en cuenta: al participar en el seminario web, la transmisión en vivo y/o el podcast Después de un Diagnóstico con Survivingbreastcancer.org, aceptas permitirnos a nosotros y a cualquier miembro del equipo de Survivingbreastcancer.org grabar, distribuir y difundir los contenidos de cualquier manera. También aceptas permitir que Laura Carfang conserve los derechos sobre los medios producidos para su posible uso futuro en discursos, libros, marketing y cualquier otra distribución pública. Para llegar a una audiencia más amplia, también grabamos en video nuestros podcasts para que puedan distribuirse en nuestro canal de YouTube. Si prefieres no ser grabado en vídeo, háznoslo saber. ¡Prepárate para agregar valor a tantas vidas!

El diagnóstico de cáncer de mama de cada persona es diferente. Cada persona responde de forma diferente al tratamiento. Cada persona toma decisiones diferentes en función de sus preferencias y circunstancias personales. No hay nada bueno ni malo. Sólo experiencias. Somos expertos en nuestra propia experiencia. A continuación encontrará muchas historias inspiradoras, entre las que se incluyen: Comparte tu historia Historias inspiradoras sobre el cáncer de mama Comparte tu Historia Compartir tu historia es importante ya que exploraras por medio de la escritura esas anécdotas, desafíos y logros después de un diagnóstico, y al mismo tiempo motivas e inspiras a otras personas de esta comunidad. Explora

Conferences & Presentations March 15-20, 2019, Las Vegas, NV National Consortium of Breast Centers 29th Annual Interdisciplinary Breast Center Conference February 15, 2019, Naples, FL University of Pittsburgh 2019 Winter Academy February 16, 2019, Naples, FL Magee-Womens Research Institute Symposium October 15, 2018, Boston, MA Exhibitor at the Asian Women for Health CelebrAsians event for breast cancer awareness month September 30, 2018, Philadelphia, PA Exhibitor at the Living Beyond Breast Cancer Conference in Philadelphia, PA February 28-March 2, Clearwater, FL 2018 Carol Carfang Nursing & Healthcare Ethics Conference Conferences &Presentations Press Media

Resources at your fingertips! Cancer Care Provides free counseling for cancer patients and their families, financial assistance, information and referrals, community and professional education, teleconference programs, and ongoing telephone and in-person support groups. Voice: 1-800-813-4673 Cancer + Careers Nonprofit that empowers and educates people with cancer to thrive in their workplace, by providing expert advice, interactive tools and educational events. Its free services include a comprehensive website and library of publications in English and Spanish; legal and insurance information; career coaching; resume review, and much more. Email:cancerandcareers@cew.org Cancer Hope Network Provides one-on-one support to cancer patients and their families undergoing cancer treatment from trained volunteers who have survived cancer themselves. Voice: 1-877-467-3638 Cancer Support Community Provides support, education, and hope through a global network to people affected by cancer. Voice: 1-888-793-9355 E-mail: help@cancersupportcommunity.org Caring Bridge Offers personal, protected websites that can be used during a health journey to share updates with family and friends. Cleaning For A Reason Offers free professional housecleaning and maid services to improve the lives of women undergoing treatment for any type of cancer. Voice: 1-877-337-3348 Lobular Breast Cancer Alliance The Lobular Breast Cancer Alliance's (LBCA’) mission is to make all who are touched by ILC aware of its unique characteristics and the critical need for more ILC research; to be the go-to source for information on ILC studies, clinical trials and educational tools, and much more. Look Good…Feel Better Helps cancer patients improve their appearance during treatment. Free workshops across the country. Voice: 1-800-227-2345 MD Anderson Cancer Center’s my Cancer Connection Matches cancer patients with others who have had the exact same diagnosis for support. Voice: 1-800-345-6324 Paddle for the Cure Provides a special support organization for breast cancer survivors /supporters. They offer a unique survivorship program that uses recreational dragon boat paddling to manage side effects of treatment for breast cancer survivors and promotes a positive and healthy lifestyle. Patient Advocate Foundation Patient Advocate Foundation is a national non-profit charity that provides direct services to patients with chronic, life threatening and debilitating diseases to help access care and treatment recommended by their doctor. We offer free telephone-based case management services, educational materials, resource directories, financial aid funds, and have a co-pay relief program. Voice: 1-800-532-5274 Patient Empowerment Network PEN is a nonprofit organization who’s mission is to fortify cancer patients and care partners with the knowledge and tools to boost their confidence, put them in control of their healthcare journey, and assist them in receiving the best, most personalized care available to ensure they have the best possible outcome. PEN helps enhance patient health literacy to enable shared decision-making and resources to empower patients and care partners at every step of their cancer journey Project Life A membership based virtual wellness house for those living with Metastatic Breast Cancer and their loved ones. R.A. Bloch Cancer Foundation BLOCH Cancer Hotline – Connects persons with cancer to home volunteers with same type of cancer. Provides free books about cancer. Voice: 1-800-433-0464 Skarlette The Skarlette collection; attractive post-surgical lingerie, designed by flat women, for flat women. Email: hello@skarlette.co.uk Take Them a Meal Provides meal planning service for caregivers, friends, and family. Triage Cancer Triage Cancer provides education on legal and practical issues that may impact individuals diagnosed with cancer and their caregivers. Through free in-person and online educational events, materials, animated videos, and state-specific resources, Triage Cancer provides expert content on issues related to work, insurance, disability benefits, finances, estate planning, medical decision-making, and more. SUPPORT SERVICES FOR SPECIFIC POPULATIONS African American Breast Cancer Alliance Educating and supporting African Americans in their journeys with breast cancer and survivorship. Asian Women for Health Asian Women for Health is a peer-led, community-based network dedicated to advancing Asian women’s health and wellness through education, advocacy, and support as well as through their 8-week Achieving Whole Health online wellness program. The goal is for Asian women to be well informed, have access to care that is of great quality and culturally appropriate so they are inspired to live happy, healthy lives. His Breast Cancer HIS Breast Cancer Awareness nonprofit organization was founded in honor of all men who are at risk of, diagnosed and surviving with the Disease of Breast Cancer and to those who have died because of it. Our mission is to increase awareness and hence the early detection for all men and to help those who are at high risk due to genetics and other risk factors to gain access to regular screenings. hisbreastcancer@gmail.com Indian Health Service If you are a member of a federally recognized tribe, you may be eligible for health services within the Indian Health Service. Men Against Breast Cancer Offers educational materials, online videos, workshops, and one-on-one networking with other men whose loved one has breast cancer. Conducts National Male Caregivers Conference and regional training workshops. Voice: 1-866-547-6222 National Native American Cancer Survivors’ Support Network An educational community-based research study created to help improve the quality of cancer care and the quality of life for all American Indian, Alaska Native, and First Nations cancer patients and their loved ones. Voice: 1-800-537-8295 Sharsheret (Hebrew for “chain”) Supporting young women and their families, of all Jewish backgrounds, facing breast cancer. TigerLily Foundation Tigerlily Foundation’s mission is to educate, advocate for, empower, and support young women, before, during and after breast cancer. We envision a future where a breast cancer diagnosis doesn’t inspire fear, but ignites hope for a future. Through our programs, we seek to educate and empower women of all backgrounds, including those at heightened risk, those facing health disparities, and those with less access to care. Young Survival Coalition Provides information and support for young women with breast cancer. FINANCIAL ASSISTANCE A health care provider, such as your physician, nurse or social worker may have information on financial resources. Most hospitals and treatment centers have financial counselors. They can help you with the details of your insurance paperwork and give you an estimate of the cost of your treatment. Financial counselors can also help you work out a payment plan. If you are unable to pay, some places may be willing to reduce or waive some costs if you ask. Hospital discharge planners, patient service offices, nurse navigators and patient navigators may also have information on resources and advice about financial matters. Insurance questions For questions about your insurance policy, state insurance agencies and insurance companies can be helpful. Learn more about insurance. No matter your income, you may qualify for financial aid from federal, state or local programs. A financial counselor at your hospital can help you learn about these programs. Many organizations offer financial assistance and help with travel, lodging and medical items, including prescription drugs. Some are listed below. Information on insurance and other financial issues Affordable Care Act (U.S. Department of Health and Human Services) Find information on choosing a health insurance plan and the Affordable Care Act. A.M. Best Company Find insurance company ratings. American Association of Retired Persons (AARP) Find detailed information on Medicare and other health insurance programs for people over 50. 888-OUR-AARP (888-687-2277) American Cancer Society – Understanding Financial and Legal Matters Find information on financial topics. 800-ACS-2345 (800-227-2345) HealthWell Foundation The HealthWell Foundation is a national non-profit organization that provides financial assistance to insured Americans who struggle to meet their out-of-pocket costs for medical treatments. Email: grants@healthwellfoundation.org Phone: (800) 675-8416 National Association of Insurance Commissioners Find your state's insurance commissioner. National Cancer Legal Services Network Find a directory of organizations that offer free legal help for people diagnosed with cancer and their families. National Coalition for Cancer Survivorship Find the booklets “Understanding Your Health Insurance” and "Your Employment Rights." 877-NCCS-YES (877-622-7937) Patient Advocate Foundation Offers financial assistance information and legal and advocacy help if an insurance claim is denied. 800-532-5274 Patient Advocate Foundation - National Underinsured Resource Directory Find local, state and national resources for people who have insurance but struggle to pay out-of-pocket costs of care. 800-532-5274 The Catherine H. Tuck Foundation Offers financial assistance for personal expenses including rent, utilities and food, and transportation to and from cancer treatments. Healthcare Assistance The Pink Fund Offers financial assistance for health insurance premiums. Sisters Network Inc. Offers financial assistance for breast prosthesis, medical bras and compression arm sleeves. Strings for a Cure Offers financial assistance for personal expenses including mortgage or rent, utilities, food and car payments. Social Security Administration Find your local social security office. Women’s Health and Cancer Rights Act (U.S. Department of Labor) Find information on federal laws requiring insurance coverage of breast reconstruction after mastectomy. Prescription drug assistance CancerCare – Co-payment Assistance Foundation Offers health insurance co-payment assistance for chemotherapy and targeted therapy drugs. 866-55-COPAY (866-552-6729) Genetic testing Myriad Financial Assistance Program Offers financial assistance for genetic testing. NeedyMeds.com Offers information on drug company assistance programs. Patient Advocate Foundation Find an online directory of drug company assistance programs. Partnership for Prescription Assistance Offers low-cost and free prescription drug programs for people with limited income. 888-4PPA-NOW (888-477-2669) Patient Advocate Foundation – Co-Pay Relief Program Offers financial assistance for prescription drug co-payments. 866-512-3861 Quest Diagnostic's Patient Assistance Program Offers financial assistance for genetic testing. Rx Hope Find an online directory of prescription drug assistance programs. Strings for a Cure Offers financial assistance for prescription drugs co-payments. TRANSPORTATION ASISISTANCE The social work and care coordination departments at your hospital may have information on local transportation programs. Some cancer organizations also have programs that can help. City, county and state agencies can arrange for low-cost or free local transportation for people with disabilities. For more information on these services, contact your city, county or state transportation department. American Cancer Society – Road to Recovery Offers local transportation to and from cancer treatments. 800-ACS-2345 (800-227-2345) CancerCare – AVONCares Offers financial assistance for transportation to and from cancer treatments. 800-813-HOPE (800-813-4673) Corporate Angel Network Uses empty seats on corporate planes to help cancer patients reach treatment centers. (Travel for caregivers is not covered.) 866-328-1313 Lifeline Pilots Offers air travel to treatment centers for cancer patients and their caregivers. 800-822-7972 Long-distance transportation Air Charity Network Offers air travel to treatment centers for cancer patients and their caregivers. 877-621-7177 Mercy Medical Airlift Offers air travel to treatment centers for cancer patients and their caregivers. 800-296-1217 National Patient Travel Center Offers free or discounted air travel to treatment centers for cancer patients and their caregivers. 800-296-1217 LODGING ASSISTANCE If your hospital or treatment center is far from home, there may be times when you and your family need to find a place to stay overnight. Many hospitals and treatment centers can arrange a discount rate at a nearby hotel or motel. The American Cancer Society can also help. American Cancer Society – Hope Lodge and hotel lodging Offers lodging for families during cancer treatment. 800-ACS-2345 (800-227-2345) Joe's House Find an online directory of free and discounted lodging for cancer patients and their families. Child care and elder care assistance If children or elderly family members rely on you to take care of them, it can be hard to get to treatment. Family and friends may be able to help. (They often want to help, but don’t know how. This is one way they can help you.) The programs below also offer help. CancerCare – AVONCares Program Offers financial assistance for child care during treatment. 800-813-HOPE (800-813-4673) Low-cost and free mammograms Medicare, Medicaid and most insurance companies cover the cost of mammograms and prescription drugs for people with low-income and those 65 and older. Since September 2010, the Affordable Care Act has required all new health insurance plans to cover yearly mammograms with no co-payment (co-insurance) for women ages 40 and older. In many parts of the U.S., low-cost or free mammograms are also offered through national programs and community organizations. Komen Affiliates fund breast cancer education and screening projects in their communities for those who need it most. Find an Affiliate in your area to learn what resources are available. Komen also offers transportation services to and from cancer treatments, financial assistance for child care and elder care during treatment, and financial assistance for some medications , medical equipment, and lymphedema supplies. Call the Komen Breast Care Helpline at 1-877 GO KOMEN (1-877-465-6636) Monday through Friday from 9:00 a.m. to 10:00 p.m. ET and from 6:00 a.m. to 7:00 p.m. PT to help find low-cost options in your area. Each October, during Breast Cancer Awareness Month, many imaging centers offer mammograms at reduced rates. To find a certified mammography center in your area, visit the FDA website. National Breast and Cervical Cancer Control Program Provides access to breast cancer screening to low-income, uninsured and underinsured women. Planned Parenthood Offers clinical breast exams and referrals for mammography (and any follow-up testing, such as breast ultrasound). BREAST CANCER SUPPORT SERVICES

Breast Cancer Poetry Writing is a great form of therapy and healing. Enjoy the original compositions from our Survivingbreastcancer.org Community! Be Inspired. Submit Your Poem Después de un Diagnóstico Tue, Feb 21 Después de Un Diagnóstico Share Details Arteterapia Tue, Feb 07 Arte terapia para el Alma Share Details Multiple Dates Después de un Diagnóstico Tue, Dec 20 Virtual Share Details Multiple Dates Thursday Nights Thrivers Meetup Thu, Dec 15 Virtual Share Details Reflect and Recharge with Thomas Dooley Mon, Dec 12 Online Event Share Details Multiple Dates 15 Minute Heart Chakra Chanting with Gloria Mon, Dec 12 Online Event Share Details Multiple Dates Thursday Night Thrivers IBC Meetup Thu, Dec 08 Online Event Share Details Food & Fitness For the Cancer Survivor Tue, Dec 06 webinar Share Details Multiple Dates Thursday Nights Thrivers MBC Meetup Thu, Dec 01 Virtual Share Details Thursday Nights Thrivers MBC Meetup Thu, Dec 01 Virtual Share Details Multiple Dates 15 Minute Solar Plexus Chakra Chanting with Gloria Mon, Nov 28 Online Event Share Details Chair Yoga 4 Cancer with Tamera Mon, Nov 21 Online Event Share Details Art Therapy for Healing your Body Image with Stephanie Mon, Nov 21 Online Event Share Details Reflect and Recharge with Thomas Dooley Mon, Nov 14 Online Event Share Details Understanding Long-Term Disability Insurance Thu, Nov 10 webinar Share Details Restorative Yoga with Kate: Fall Into Meditation Mon, Nov 07 Online Event Share Details Thursday Nights Thrivers MBC Meetup Thu, Nov 03 Virtual Share Details Multiple Dates 15 Minute Sacral Chakra Chanting with Gloria Mon, Oct 31 Online Event Share Details Load More Follow Us laura@survivingbreastcancer.org 5 Cedar Street, Boston, MA Contact us © 2022, Registered 501(c)(3). EIN 82-2953427 Never miss a beat. Stay connected with SBC on Social for daily updates, news, and information!

Follow Us laura@survivingbreastcancer.org 5 Cedar Street, Boston, MA Contact us © 2022, Registered 501(c)(3). EIN 82-2953427 Never miss a beat. Stay connected with SBC on Social for daily updates, news, and information!

If you have been diagnosed with breast cancer or someone in your family has, you may consider genetic testing. HER2 is a common gene mutation that is linked to breast cancer. Breast Cancer & Genetics Check back soon Once posts are published, you’ll see them here.

Exchange Surgery Happening 8/21/2022 Undergoing Some Reconstruction. You know there is always maintenance involved with breast cancer! Our website will be back in full swing soon!

Conoce nuestro Equipo Junta Consultiva Médica Laura Carfang, M.A., Ed.D. CEO / Directora ejecutiva, Co-fundadora, Miembro de la Junta Directiva William Laferriere, MBA VP de Desarrollo Comercial Co-Foundador, Miembro de la Junta Directiva Kathleen Boyle, Ph.D. Miembro de la Junta Directiva Abigail Johnston, J.D. Miembro de la Junta Directiva Junta Directiva Meghann Sweeney, J.D. Miembro de la Junta Directiva Tony Carfang, MBA Miembro de la Junta Directiva Dr. Amy Commander, MD Directora médica del Centro Oncológico General de Massachusetts Waltham Directora del Programa de Oncología Mamaria en el Hospital Newton-Wellesley Directora de Lifestyle Medicine Dr. Rachel Jimenez, MD Dra. Rachel Jimenz, MD Directora Asociada del Programa de Residencia de Oncología Radioterápica de Harvard Dr. Jandie Posner Oncologa quirúrgica Dr. Sandra Naaman Endocrinologa, Especialista en Hipertensión, Salud de la Mujer, Supervivencia al Cáncer de Mama de la Universidad de Medicina de Chicago Después de un Diagnóstico Marca la diferencia. Cambia vidas. Dona Hoy. Contribuye a nuestro programa Después de un Diagnóstico Quiero apoyar Brenda Coronado, CPIM VP de Operaciones Cofundadora de Después De Un Diagnóstico Directora de Participación Comunitaria Lourdes Heras, MPH VP de Operaciones Cofundadora de Después De Un Diagnóstico Directora de Participación Comunitaria Elisa Herrera BBA Directora de Programas y Eventos Malena Suárez, Directora de Operaciones

A virtual breast cancer support group offered in Spanish. Después de un Diagnóstico No events at the moment Después de un Diagnóstico

Meditation for Breast Cancer (On Demand) Visit our official YouTube meditation playlist!

Read Stories My name is Kyla Thompson, and I welcome you, kids, like me, to our space! My mom passed away of metastatic breast when I was 13. She was first diagnosed when I was two years old. I didn't know what breast cancer was then. 11years later, on October 21, 2014, a world that was filled with sports, homework, friends, and more shifted in a few seconds. My mom was gone. It was at a breast cancer walk just a few weeks later, with thousands of people, when I realized the need for #pinkkids. Of all the walkers, more than half were kids. I knew then I wasn’t alone. I knew we needed to connect with each others and #pinkkids is the place for that connection. We are starting by sharing stories on the blog and through podcasts, as well as a private Group (link below). We’ll keep you up to date through SBC emails, as well as our Instagram (_pinkkids_). Looking forward to talking! Do you have a mom or dad who has been diagnosed with breast cancer? Or perhaps you have lost a parent to MBC? Connect with Kyla, share your story, post your why, or just let her know how you are doing today, we're all here to listen, support, and be a resource! Email Kyla at pinkkids@survivingbreastcancer.org Salud Física Salud Mental Arteterapia Podcast More Resources For Children & Adolescents Share your story. Share Your Why. Share A picture. Share. Email Kyla at pinkkids@survivingbreastcancer.org

Join Our Mailing List and Receive Weekly Newsletters and Announcements Never Miss A Beat First Name Last Name Email City Submit Thanks for subscribing! State Resources & Toolkits Check back soon Once posts are published, you’ll see them here. Living Well With Metastatic Breast Cancer Women (and men) diagnosed with MBC have unique needs and concerns and it is important to acknowledge the emotional, mental, and physical aspects associated with such diagnoses. Living well is more than looking after one's physical self. It entails taking care of the emotional self, time management as priorities may shift, balancing quality of life with treatments and finding support and information when you need it. This Resource Guide will continually be updated with information and we're always happy to hear your feedback on what may serve you best! Living with Metastatic Breast Cancer Resources & Support So You Can Keep Living Life! Created in partnership with Abigail Johnston and the Grieving Together Project. In honor of the late Alyson Tischler. Download from the App Store Download from Google Play Download the App Have access to News and articles Private Groups Instant Message with community members RSVP to events Get support 24/7 with a community who gets it! MBC Sunday Series Every other Sunday we host free webinars for our MBC community where we invite guest speakers and panelists to address the most pressing questions. Topics range from grief support, speaking to your family about your diagnosis and telling your children, to advances in treatments, legal estate planning and more. Check Out Upcoming Events Get Online Support Becomea Member (It's Free) Connecting with others who have similar experiences helps us share our stories and heal. There are a variety of ways to meet those who are living with MBC through our virtual and online communities and private groups. Living With Metastatic Breast Cancer Living with metastatic breast cancer (MBC) requires unique, tailored approaches that often differ from those diagnosed at an earlier stage breast cancer. Survivingbreastcancer.org is committed to addressing the gaps between early and advance stage breast cancer to improve education, support, and resources for our MBC community. Metastatic Breast Cancer Terms and Definitions Metastatic breast cancer is also referred to as Stage IV, or advanced (stage) breast cancer. It is when the cancer cells have spread through the lymphatic system or blood stream to other parts of the body such as the bones, brains, lungs, or liver. De Novo is a term that refers to a metastatic diagnosis at the time of initial diagnosis and staging. A de novo metastatic breast cancer diagnosis accounts for approximately 6-10% of breast cancer diagnoses. Distant Recurrence is a term that is used when the cancer has returned after an initial diagnosis and treatment and has spread beyond the breast to other parts of the body. The average time from diagnosis to distant recurrence is approximately 5 years, though it can vary widely. Thursday Night Thrivers Meetup Every Thursday at 7pm ET, those diagnosed with breast cancer meet up for our "no-agenda" zoom hang out. Our meetups are unique because they are hosted by the community, for the community. This is peer-to-peer support at it's finest and not your average support group. There is a place and time for social workers and medical professionals but at our Thursday Night Thrivers Meetups , it is come as you are to meet up and hang out with like minded friends! All stages are welcomed. On the third Thursday of each month, we will also host a breakout room specifically for MBC. Tue, Feb 21 Después de un Diagnóstico / Después de Un Diagnóstico Details Feb 21, 2023, 7:00 PM Después de Un Diagnóstico Share Tue, Feb 07 Arteterapia / Arte terapia para el Alma Details Feb 07, 2023, 6:00 PM – 7:00 PM Arte terapia para el Alma ¡Únete a nosotros para un taller de terapia de arte de 60 minutos, dirigido por la increíble sobreviviente de cáncer de mama y terapeuta de arte, Stephanie, LCPC y fundadora de Creative Transformations! Share Multiple Dates Tue, Dec 20 Después de un Diagnóstico / Virtual Details Dec 20, 2022, 7:00 PM – 8:00 PM EST Virtual ¡Únete con nosotros para nuestro exclusivo Evento Martes - después del diagnóstico en español! Share Multiple Dates Thu, Dec 15 Thursday Nights Thrivers Meetup / Virtual Details Dec 15, 2022, 7:00 PM – 8:00 PM EST Virtual This is your weekly breast cancer support group! It's a welcoming and inviting virtual space where you can come to meet others, ask questions, or just listen in. Our session are always confidential and a friendly space offering support as well a a bit of humor. Share Mon, Dec 12 Reflect and Recharge with Thomas Dooley / Online Event Details Dec 12, 2022, 6:00 PM – 7:30 PM EST Online Event How can we dial down the noise in our daily lives to listen to the story emerging within ourselves? In this interactive session, we will come together to reflect on the personal narratives that give shape and meaning to our lives and find community in the experiences we share. Share Multiple Dates Mon, Dec 12 15 Minute Heart Chakra Chanting with Gloria / Online Event Details Dec 12, 2022, 11:00 AM – 11:15 AM EST Online Event Join Gloria for 15 minutes of heart chakra chanting. Explore the heart chakra, connect with your vibration, and assist in your transformation and conscious awareness, both individually and collectively. Share Multiple Dates Thu, Dec 08 Thursday Night Thrivers IBC Meetup / Online Event Details Dec 08, 2022, 7:00 PM – 8:30 PM EST Online Event Join the Inflammatory Breast Cancer SBC community, meet others diagnosed with IBC, and connect with those who truly understand the unique needs we all face. Share Tue, Dec 06 Food & Fitness For the Cancer Survivor / webinar Details Dec 06, 2022, 1:00 PM EST webinar This webinar covers how food and fitness may impact cancer survivors and how to create a healthy plan post treatment, including how to to choose an appropriate food plan to coincide with a fitness program to decrease comorbidities. Share Multiple Dates Thu, Dec 01 Thursday Nights Thrivers MBC Meetup / Virtual Details Dec 01, 2022, 7:00 PM – 8:00 PM EST Virtual Join us for our signature Thursday Night Thrivers Meetup! On the first and third Thursday of every month, we will have a special breakout room for the MBC community. This space will be hosted by the incredible Dawn Oswald, a woman living with MBC. Share Thu, Dec 01 Thursday Nights Thrivers MBC Meetup / Virtual Details Dec 01, 2022, 7:00 PM – 8:00 PM EST Virtual Join us for our signature Thursday Night Thrivers Meetup! On the first and third Thursday of every month, we will have a special breakout room for the MBC community. This space will be hosted by the incredible Dawn Oswald, a woman living with MBC. Share Multiple Dates Mon, Nov 28 15 Minute Solar Plexus Chakra Chanting with Gloria / Online Event Details Nov 28, 2022, 11:00 AM – 11:15 AM EST Online Event Join Gloria for 15 minutes of solar plexus chakra chanting. Explore the solar plexus chakra, connect with your vibration, and assist in your transformation and conscious awareness, both individually and collectively. Share Mon, Nov 21 Chair Yoga 4 Cancer with Tamera / Online Event Details Nov 21, 2022, 7:00 PM – 8:00 PM EST Online Event Join Tamera Anderson-Hanna for guided Chair Yoga. Let's release and breathe from the comfort of our chair! Please scroll down to "About The Event" for the waiver link. Share Mon, Nov 21 Art Therapy for Healing your Body Image with Stephanie / Online Event Details Nov 21, 2022, 6:00 PM – 7:00 PM EST Online Event Breast cancer impacts our body image, identity, and intimacy with ourselves and others. This workshop will guide you through a guided meditation and art experience that can set the foundation for healing the body image and identity. Share Mon, Nov 14 Reflect and Recharge with Thomas Dooley / Online Event Details Nov 14, 2022, 6:00 PM – 7:30 PM EST Online Event How can we dial down the noise in our daily lives to listen to the story emerging within ourselves? In this interactive session, we will come together to reflect on the personal narratives that give shape and meaning to our lives and find community in the experiences we share. Share Thu, Nov 10 Understanding Long-Term Disability Insurance / webinar Details Nov 10, 2022, 1:00 PM EST webinar This webinar on Understanding Long-Term Disability Insurance will provide information on making a long-term disability insurance claim. We will discuss steps that employees can take while still working but considering taking time off, tips for submitting a long-term disability claim, how short-term Share Mon, Nov 07 Restorative Yoga with Kate: Fall Into Meditation / Online Event Details Nov 07, 2022, 6:00 PM – 7:00 PM EST Online Event Like the majestic trees of the forest, we will shed those things that are no longer serving us through gentle movements, and then dive into a transcendental meditation. Share Thu, Nov 03 Thursday Nights Thrivers MBC Meetup / Virtual Details Nov 03, 2022, 7:00 PM – 8:00 PM EDT Virtual Join us for our signature Thursday Night Thrivers Meetup! On the first and third Thursday of every month, we will have a special breakout room for the MBC community. This space will be hosted by the incredible Dawn Oswald, a woman living with MBC. Share Multiple Dates Mon, Oct 31 15 Minute Sacral Chakra Chanting with Gloria / Online Event Details Oct 31, 2022, 11:00 AM – 11:15 AM EDT Online Event Join Gloria for 15 minutes of sacral chakra chanting. Explore the sacral chakra, connect with your vibration, and assist in your transformation and conscious awareness, both individually and collectively. Share Load More Find Support For Your Kids Read Stories from our MBC Members Share Your Story Salud Física Salud Mental Arteterapia Podcast More

Check back soon Once posts are published, you’ll see them here.

Download PDF Surgery Options Questions to ask your Surgeon What should I expect during a consultation for breast reconstruction? During your breast reconstruction consultation, be prepared to discuss: Your surgical goals Medical conditions, drug allergies and medical treatments Current medications, vitamins, herbal supplements, alcohol, tobacco and drug use Previous surgeries Your plastic surgeon will also: Evaluate your general health status and any pre-existing health conditions or risk factors Examine your breasts and take measurements of their size and shape, skin quality and placement of nipples and areolae Take photographs Discuss your options and recommend a course of treatment Discuss likely outcomes of breast reconstruction and any risks or potential complications Be sure to ask your plastic surgeon questions. It's very important to understand all aspects of your breast reconstruction. To help, we have prepared a checklist of questions to ask your breast reconstruction surgeon that you can take with you to your consultation. It's natural to feel some anxiety, whether it's excitement for your anticipated new look or a bit of preoperative stress. Don't be shy about discussing these feelings with your plastic surgeon. What options are available for breast reconstruction? If you've decided to have breast reconstruction, you'll still have many things to think about as you and your doctors talk about what type of reconstruction might be best for you. There are many different reconstruction techniques available. Take the time to learn about the breast reconstruction options and consider talking to others who have had that procedure before you make a decision. Breast reconstruction with implants Implant-based breast reconstruction may be possible if the mastectomy or radiation therapy have left sufficient tissue on the chest wall to cover and support a breast implant. For patients with insufficient tissue on the chest wall, or for those who don't desire implants, breast reconstruction will require a flap technique (also known as autologous reconstruction). The most common method of tissue reconstruction uses lower abdominal skin and fat to create a breast shape. There are several techniques that can be used for implant-based breast reconstruction. Make sure to discuss with your plastic surgeon which is appropriate for you. Immediate breast reconstruction above the pectoral muscle This procedure is performed in combination with the mastectomy and results in an immediate breast mound. After the mastectomy has been performed by the breast surgeon, the plastic surgeon will place the breast implant, wrapped in a biological mesh known as acellular dermal matrix (ADM), to help the implant maintain correct anatomic position, above the pectoralis muscle. With this procedure, recuperation may be more rapid because the muscle in the chest has not been elevated. Further, the breast implant itself is not influenced by the contraction of the muscle. Complications, while rare, may include skin loss, excess bleeding, infection, malposition of the implant so that asymmetry occurs, wrinkling or rippling of the implant, possible fluid collection underneath the implant and/or unfavorable scarring. This procedure may also require secondary autologous fat transfer to eliminate upper pole wrinkling and rippling over time, which will occur over secondary procedures. Immediate breast reconstruction under the pectoral muscle This procedure is also performed as a combination with the mastectomy and results in an immediate breast mound. The incision generally is performed through the mastectomy site. Once the mastectomy is completed, the plastic surgeon will elevate the pectoralis major muscle. This will allow the muscle to retract upward and allow a pocket to be developed underneath the muscle and at the bottom of the normal breast position. Delayed breast reconstruction utilizing tissue expander. The initial portion of this procedure entails the breast surgeon performing a standard mastectomy and possible axillary dissection. In many instances, a drain will be placed between the muscle and the skin of the mastectomy. Once these procedures have been performed, the plastic surgeon will divide the lower pole of the chest wall muscle, elevate the chest wall muscle and the lateral chest muscle together upwards towards the collarbone. After that is done, the muscle and tissue below is elevated together to form the pocket for the breast expander at the base of the breast or the inframammary crease. The pocket is made large enough for the expander to be placed and the muscle closed. Occasionally, there is a need for placement of a small amount of acellular dermal matrix (ADM) to assist in the closure of the muscle. There are two types of breast tissue expander ports. One, similar to a chemotherapy port, is placed separate from the tissue expander, usually along the rib cage. This will require a separate small incision for the port. The second type is a port that is contained within the expander itself. In both instances, the ports will be used to inflate the tissue expander over several visits with saline solution. The port is accessed with a small needle and saline is injected into the expander through the port site Tissue expansion usually occurs weekly according to patient tolerance. The volume of the tissue expanders commonly exceeds the weight of the mastectomy tissue. Once the final tissue expansion, or stretching, is completed there will be a time of passive expansion where little to no volume is added to the tissue expanders. This allows the muscle and skin to stretch and relax. The length of time will vary from patient to patient. Once this is completed, a second outpatient procedure will be necessary to remove the tissue expander and place the permanent breast prosthesis. Complications, while rare, may include skin loss, exposure of the expander, excess bleeding, infection, malposition of the implant so that asymmetry occurs, wrinkling or rippling of the implant, possible fluid collection underneath the implant, pain at the injection site, muscle spasms with expansion and/or unfavorable scarring. Lymphedema 101 On Breast Cancer Conversations, the Podcast Listen Now A biodegradable acellular dermal matrix (ADM) will be placed at the bottom of the breast or inframammary crease and attached to the muscle. The breast implant will be placed under the ADM and your own muscle. This allows the breast implant to settle in a normal position, and the ADM stretches into a pleasing, rounded lower breast shape. It is not uncommon to have drains placed with this procedure. They may be removed anywhere from 48 hours to 2 weeks after surgery. This procedure is a one-staged procedure, which allows the desired shape to result without any further surgical intervention. The muscle on top of the implant will help prevent the development of upper pole wrinkling. Complications, while rare, may include skin loss, excess bleeding, infection, malposition of the breast implant so that asymmetry occurs, wrinkling or rippling of the implant, possible fluid collection underneath the implant and/or prosthesis deflation. Immediate breast tissue expander placement The surgical process for saline breast tissue expanders and breast expanders following mastectomy are the same. Expanders with saline have been used for decades but recently, a new type of expander using air, which allows for more patient control, have been introduced. Expanders have some of the same complication rates and risks as the other types of breast reconstruction, which include infection, seroma, hematoma, extrusion and/or expander deflation. The expander is placed into a submuscular or subcutaneous space with no external filling ability. The expander will fill with compressed air contained within the expander itself. The patient will do self-controlled expander fills utilizing an external automatic activation device at home and will achieve similar results to the standard saline filled tissue expansion devices. It will be necessary to monitor the incisions and progress on your own and contact the physician if you feel there is something wrong. The advantage of the expander it that it may decrease doctor visits and decrease total expansion time. Immediate breast reconstruction utilizing latissimus dorsi muscle. This procedure is performed as a secondary operation immediately during the mastectomy or delayed after radiation. The latissimus muscle is a very large vascular muscle in the back that is attached at the base of the arm, extends onto the chest from the arm past the shoulder blade and attaches close to the spinal column. The latissimus muscle stretches to the tip bone and hallway into the axilla or armpit area and is supplied mostly by artery in the axilla. The latissimus flap is frequently used when the amount of soft tissue is limited secondary to surgery, the pectoralis muscle is absent, partially removed or damaged secondary to radiation. It entails undermining the skin on the back and releasing some of the skin allowing it to remain attached to the muscle. The main muscle and artery is called pedicle flap. This flap is released from the back, passed through a tunnel that is made underneath the axilla and into the anterior chest to fill the mastectomy defect site. The muscle is placed and sutured to the chest wall. An implant is then placed behind this flap and in front of the chest. One can also use a tissue expander and gradually increase to breast size. The advantage to this expander is it can completely replace the amount of breast tissue that has been removed and protect the latissimus flap. A completely inflated implant or a postoperative adjustable expander/implant can be immediately placed. It is not uncommon to require a secondary revision procedure to gain more accurate symmetry of both breasts. The latissimus flap is recommended for patients who have already had mastectomy and radiation. The use of radiation frequently limits the amount of implant surgery that can be performed. The secondary advantage of this flap is that it brings new blood flow and healthy skin to the radiated field. It is also recommended for patients who are very thin and have limited options for flap reconstruction. Complications, while rare, may include limited blood flow of the artery compromising the flap, skin loss, exposure of the expander, excess bleeding, infection, malposition of the implant so that asymmetry occurs, wrinkling or rippling of the implant, possible fluid collection underneath the implant, pain at the injection site, muscle spasms with expansion and/or unfavorable scarring. Breast reconstruction with abdominal-based flaps Sometimes a mastectomy or radiation therapy will leave insufficient tissue on the chest wall to cover and support a breast implant. In these cases, breast reconstruction usually requires a flap technique (also known as autologous reconstruction). This is the most common method of tissue reconstruction, using lower abdominal skin and fat to create a breast shape. A woman may also choose not to have an implant for personal reasons. The skin and fat used for this procedure is the tissue between your belly button and pubic bone that you can pinch. Once this tissue is taken to make a breast, you will typically have a scar from hip bone to hip bone and around your belly button. However, some women may not be candidates for abdominal-based flaps for various reasons: • Not enough donor tissue in the lower abdomen • Prior scars that may have damaged important blood vessels • Previous flaps that have failed and seeking an alternative Specific flap options Several different flaps use the tissue from the lower abdomen. The difference between each of them is related to blood vessels that supply these flaps. These flaps include the Pedicled TRAM (traverse rectus myocutaneous) flap, the free TRAM flap, the DIEP (deep inferior epigastric artery perforator) flap and the SIEA (superficial epigastric artery) flap. Pedicled TRAM flap A TRAM flap uses the muscle, fat and skin from your lower abdomen to reconstruct a breast. In order to survive on your chest in its new location, this tissue requires a blood supply. The blood supply to this tissue comes from the underlying rectus (six-pack) muscle. The flap remains attached to your rectus abdominis muscle and is tunneled up through the abdomen and chest to create the breast mound. Since your entire muscle is sacrificed, you may experience some abdominal weakness or have difficulty performing sit-ups. Free TRAM flap Like the TRAM flap, the free TRAM flap is also based on the blood vessels coming through the rectus abdominis muscle. However, in this flap the muscle above and below the blood vessels is divided, so that only a portion of muscle is removed. The entire flap is then transplanted to the chest. The blood vessels from the muscle are connected to blood vessels in the chest using a microscope. DIEP flap The DIEP flap utilizes the same lower abdominal skin and fat as the TRAM and free TRAM flap; however, it spares the rectus abdominis muscle and fascia. Rather than taking the entire muscle or a small portion of the muscle, the small blood vessels – an artery and a vein – that come through the muscle to the skin and fat are identified; these vessels are then dissected through the muscle prior to being divided. Once they are divided, the tissue is again transplanted to the chest and the vessels are connected to blood vessels in the chest. Since your muscle is preserved, there is a lower risk of abdominal weakness or hernias and less postoperative pain. SIEA flap The SIEA flap also uses the lower abdominal skin and tissue, but the blood vessels that supply this flap do not go through the abdominal muscle. Rather, they only go through the fat. Advantages of this flap include preservation of the abdominal muscles, resulting in less postoperative pain and a speedier recovery. However, these blood vessels may not be present in all women; and even when present, may be too small to provide a reliable blood supply for a flap. For these reasons, the SIEA flap is not performed as frequently as the DIEP or free TRAM flaps. Special notes regarding recovery Because the free TRAM, DIEP and SIEA flaps involve microsurgical tissue transfer, blood flow to the flap is closely monitored in a hospital setting after surgery. If there are concerns about the flap, a reoperation may be necessary to assess the blood flow. Breast reconstruction with thigh-based flaps Sometimes a mastectomy or radiation therapy will leave insufficient tissue on the chest wall to cover and support a breast implant. In these cases, breast reconstruction usually requires a flap technique (also known as autologous reconstruction). Thigh-based flaps may be a good option for women with small to medium volume breasts. To achieve a larger size, these flaps may be combined with an implant or another flap (called "stacked flaps," which are not widely available). All of these techniques require your plastic surgeon to have skill and training in microsurgery. However, some women may not be candidates for thigh-based flaps for various reasons: • Not enough donor tissue in the upper thighs • Prior scars that may have damaged important blood vessels • Previous flaps have failed and they are seeking an alternative Specific flap options Gracilis-based flaps are based on the gracilis muscle, located in the upper inner thigh. The gracilis muscle helps bring the leg toward the body, and its function will be lost after this type of surgery. During these procedures, a flap of skin, fat, muscle and blood vessels from the upper thigh is moved to the chest to rebuild the breast. Blood vessels are carefully reattached using microsurgery. Different names are used to describe the orientation of the resulting donor site incision on the upper inner thigh: • TUG flap: Transverse Upper Gracilis flap • VUG flap: Vertical Upper Gracilis flap • DUG flap: Diagonal Upper Gracilis flap The choice of incision depends on your unique thigh shape and your surgeon's experience. Most surgeons will try to conceal the scars in the crease at the top of the thigh, but the scar may end up a bit lower and be visible while wearing a bathing suit. These flaps result in a tighter inner thigh, similar to an inner thigh lift. Similar to the gracilis-based flaps, a PAP flap uses skin and fat from the back of the upper thigh to reconstruct the breast using microsurgery. PAP stands for Profunda Artery Perforator, which is a blood vessel that supplies this area of the thigh. No muscle is used, so a PAP flap is considered muscle-sparing. PAP flap scars are usually hidden in the crease between the lower buttock and upper thigh. Special notes regarding recovery Because these flaps involve microsurgical tissue transfer, blood flow to the flap is closely monitored in a hospital setting after surgery. If there are concerns about the flap, a reoperation may be necessary to assess the blood flow. Thigh-based flaps do tend to have more healing problems at the donor site than abdominal-based flaps due to the location of the incision. Lower leg swelling may occur but usually resolves with time. When one thigh-based flap is used to reconstruct one breast, asymmetry may result due to tightness and thinness of one thigh. Additional procedures may be recommended to improve symmetry between the thighs.